The “What’s New?” page was updated to include the following the ECD Global Alliance 2014 End-of-Year Newsletter.

The “Main” page was updated to include:
–  Registration information for the 2015 International ECD Medical Symposium scheduled for October 8, 2015
–  Registration information for the 2015 International Patient/Family Gathering scheduled for October 9-11, 2015
–  The 2014 International ECD Medical Symposium summary
–  An update on the progress regarding the 2015 challenge to raise $241,000 before the 2015 Patient/Family Gathering.
–  Information about the NIH “Dabrafenib and Trametinib in Treating Patients With Erdheim-Chester Disease and BRAF Mutation” trial.

The “ECD Studies” page was updated to include information about the NIH “Dabrafenib and Trametinib in Treating Patients With Erdheim-Chester Disease and BRAF Mutation” trial.

The “ECD Global Alliance” page was updated with the following:
–  A more current graphic of the organization’s achievements
–  Information about the ECD Facebook page
–  Information about the Rareconnect.org community and ECD Facebook group
–  Information about the ECD part-time staff of one
–  An up-to-date list of members of the ECD Global Alliance Board of Directors

New entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers.

Physician contact information was updated on the “Physicians” page to include –
Fadi Braiteh, MD
Medical Oncology Director, Phase I Translational Oncology Program (TOP) and GI Malignancies
USON Research Network
Comprehensive Cancer Centers of Nevada
3730 S Eastern Avenue
Las Vegas, Nevada 89169  USA
Telephone:  702-952-3400
Fax:  702-952-3723
email:  fadi.braiteh@usoncology.com

New links to valuable resources were added to the “Caregiver” page as follows:
–  Informed and Involved: How to Navigate the Healthcare System
–  When Caring Takes a Toll: 4 Ways to Restore Intimacy

Links were added to the list of published articles, accessible without charge on the internet, as found on the “Technical Papers Published Papers” page.  They are:

1. H. Miles Prince
   Identifying mutant pathways in the histiocytoses
   Blood. 2014 Nov 6;124(19):2901-3. doi: 10.1182/blood-2014-09-597765
2. Krishna VV, James TE, Chang KT, Yen SS.
   Erdheim-Chester disease with rare radiological features in a 14-year old girl with pre-B Acute Lymphocytic Leukemia and Diabetes mellitus.
   J Radiol Case Rep. 2014 Aug 31;8(8):7-15. doi: 10.3941/jrcr.v8i8.1899. eCollection 2014 Aug.
3. Mazor RD, Manevich-Mazor M, Kesler A, Aizenstein O, Eshed I, Jaffe R, Pessach Y, Goldberg I, Sprecher E, Yaish I, Gural A, Ganzel C, Shoenfeld Y.
   Clinical considerations and key issues in the management of patients with Erdheim-Chester Disease: a seven case series.
   BMC Med. 2014 Dec 1;12:221. doi: 10.1186/s12916-014-0221-3.
4. Urban ML, Palmisano A, Nicastro M, Corradi D, Buzio C, Vaglio A.
   Idiopathic and secondary forms of retroperitoneal fibrosis: A diagnostic approach  
   Rev Med Interne. 2015 Jan;36(1):15-21. doi: 10.1016/j.revmed.2014.10.008. Epub 2014 Nov 18.

The ECD Brochures as found on the “Resources” page were updated.

The Case Locations as found on the “Patient-to-Patient” and “ECD Global Alliance” pages, were updated.

Chat summaries were added to the “Chat Room” page.

The “Patient-to-Patient” page was updated to include:
–  Information about the ECD Facebook page
–  Information about the Rareconnect.org community and ECD Facebook group