Update Information for February 3, 2014 (V 2.45)

The “Grants” and “Main” pages were modified to provide the announcement calling for Letters of Intent related to the 2014 ECD-GA Grant award cycle.

The “Main” page and the “What’s New?” page were modified to include the 2013 End of Year Report.

Updated the Case Log as found on the “Patient-to-Patient” page was updated with information from another patient.

The Case Locations as found on the “Patient-to-Patient” and “ECD Global Alliance” pages, was updated.

Links were added to the list of published articles, accessible without charge on the internet, as found on the “Technical Papers Published Papers” page.  They are:

  1. Szturz P, Adam Z, Rehak Z, Koukalova R, Kren L, Moulis M, Krejcí M, Mayer J
    Salvage lenalidomide in four rare oncological diseases
    Tumori. 2013 Sep-Oct;99(5):251e-6e. doi: 10.1700/1377.15326
  2. Manaka K, Makita N, Iiri T.
    Erdheim-Chester disease and pituitary involvement: a unique case and the literature
    Endocr J. 2013 Dec 3

New entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers. The additions are as follows:

  1. An article published in Endocr J.  The article is entitled, “Erdheim-Chester disease and pituitary involvement: a unique case and the literature”, includes an abstract and can be found online.
  2. An article published in J Postgrad Med.  The article is entitled, “Erdhei-Chester disease: A clinical and radiological masquerade”, does not includes an abstract.
  3. An article published in Recenti Prog Med.  The article is entitled, “Cardiovascular involvement in Erdheim-Chester syndrome: clinical and therapeutic implications”, includes an abstract and can be found online.
  4. An article published in Tumori.  The article is entitled, “Salvage lenalidomide in four rare oncological diseases”, includes an abstract and can be found online.
  5. An article published in Skeletal Radiol.  The article is entitled, “Erdheim-Chester disease: An unusual presentation of an uncommon disease”, includes an abstract and can be found online.
  6. An article published in G Ital Nefrol.  The article is entitled, “Renal involvement in erdheim-chester disease”, includes an abstract and can be found online.
  7. An article published in Clin Exp Rheumatol.  The article is entitled, “Imaging in Erdheim-Chester disease: classic features and new insights”, includes an abstract and can be found online.
  8. An article published in Intern Med J.  The article is entitled, “Successful treatment of Erdheim-Chester disease with combination of interleukin-1-targeting drugs and high-dose glucocorticoids”, includes an abstract and can be found online.
  9. An article published in Dermatol Online J.  The article is entitled, “Anakinra-responsive lichen planus in a woman with Erdheim-Chester disease: a therapeutic enigma”, includes an abstract and can be found online.

Chat summaries were added to the “Chat Room” page.

The “What is ECD?” page was modified to correct some typographical errors.

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