News for Feb. 1, 2009 (V 1.1.8)

The first newsletter published by the ECD Global Alliance has been added to the ‘News/Updates’ selection on the main menu. This is ‘Issue One’ of what is hoped to be a semi-regular publication.

Additional abstracts were added to the ‘Abstracts of Published Papers’ list found under the ‘Published Papers | Abstracts of Published Papers’ selection.  This brings the list up to date through the end of January, 2009.

Additional chat room summaries have been added reporting on discussions held in those chats that have occurred since the last update.  (See Chat Room selection on the main menu.)

An update was made to the ‘ECD Global Alliance’ page to show that the group has grown to represent 35 different cases of ECD from around the world.

Just a reminder that Rare Disease Day will be on February 28, 2009.   If you have not already done so, please select the Rare Disease Day icon on the main menu of this website.  This will take you to the NORD website where you can find ideas about what you might do in your local community to help raise awareness of the need to join together to fight all rare diseases.

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  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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