News for Dec. 24, 2009 (V 2.0)

New links were added to the published articles found on the “Technical Papers | Published Papers” page.  They are:

Guo J, Wang J.
Adult orbital xanthogranulomatous disease: review of the literature.
Arch Pathol Lab Med. 2009 Dec;133(12):1994-7.

Granier M, Micheau A, Serre I.
A rare cause of cardiac tumour: an Erdheim-Chester disease with cardiac involvement co-existing with an intracerebral Langerhans cell histiocytosis
Eur Heart J. 2008 Aug;29

Taguchi T, Iwasaki Y, Asaba K, Yoshida T, Takao T, Ikeno F, Nakajima H, Kodama H, Hashimoto K.
Erdheim-Chester disease: report of a case with PCR-based analysis of the expression of osteopontin and survivin in Xanthogranulomas following glucocorticoid treatment
Endocr J. 2008 Mar;55(1):217-23. Epub 2008 Feb 13.

Charest M, Haider EA, Rush C.
An unusual cause of knee pain
Br J Radiol. 2007 Mar;80(951):227-9.

Elgeti T, Schlegl M, Nitardy A, Kivelitz DE, Stockburger M.
Images in cardiovascular medicine. Magnetic resonance imaging guiding pacemaker implantation for severe sinus node dysfunction due to cardiac involvement in Erdheim-Chester disease.
Circulation. 2007 Apr 24;115(16):e412-4

Gazzeri R, Galarza M, Amoroso R, De Bonis C, D’Angelo V.
Neurological picture. Torcular Erdheim-Chester disease
J Neurol Neurosurg Psychiatry. 2006 Sep;77(9):1078.

Kroot EJ, Weel AE, Hazes JM, Zondervan PE, Heijboer MP, van Daele PL, Dolhain RJ.
Diagnostic value of blind synovial biopsy in clinical practice.
Rheumatology (Oxford). 2006 Feb;45(2):192-5. Epub 2005 Oct 18.

Sivak-Callcott JA, Rootman J, Rasmussen SL, Nugent RA, White VA, Paridaens D, Currie Z, Rose G, Clark B, McNab AA, Buffam FV, Neigel JM, Kazim M.
Adult xanthogranulomatous disease of the orbit and ocular adnexa: new immunohistochemical findings and clinical review.
Br J Ophthalmol. 2006 May;90(5):602-8.

Nathalie Gaspar Pascaline Boudou, Julien Haroche, Bertrand Wechsler, Eric Van Den Neste, Khe Hoang-Xuan, Zahir Amoura, Remy Guillevin, Julien Savatovski, Nabih Azar, Jean-Charles Piette, Véronique Leblond
High-dose chemotherapy followed by autologous hematopoietic stem cell transplantation for adult histiocytic disorders with central nervous system involvement
Haematologica 2006; 91:1121-1125

Blanco Mateos G.
Orbital xanthogranulomatosis
Arch Soc Esp Oftalmol. 2005 Jun;80(6):329-30.  Review Spanish

Burtis MT, Ulmer JL, Miller GA, Barboli AC, Koss SA, Brown WD.
Intradural spinal vein enlargement in craniospinal hypotension
AJNR Am J Neuroradiol. 2005 Jan;26(1):34-8.

An update was made to the ‘Caregiver Information’ page to provide more information aimed at helping caregivers cope with the demands placed upon them.  A link was provided to Caregivers Coping with Chronic Illness from the National Dysautonomia Research Foundation.  Another link was provided to the Lotsa Helping Hands website that provides a tool for family, friends, neighbors, and colleagues to organize activities during times of need.  Finally, a link was also provided to a spousal caregivers blog.

New chat summaries were added to the “Chat Room” page.

An update was made to the ‘Case Locations’ file.

New entries were made to the “Abstracts of Published Papers” as listed under the “Technical Papers” selection for recently published papers.  The addition is as follows:

1. A paper published 2009 Dec 15 in “Neurology”.  The article is entitled, “Characteristic brain MRI appearance of erdheim-chester disease” and is without an abstract.
2. A paper published 2009 Dec in the “Archives of Pathology and Laboratory Medicine.”  The article is entitled, “Adult orbital xanthogranulomatous disease: review of the literature” and includes an abstract.
3. A paper published October 2009 in the “Best Practice & Research Clinical Endocrinology & Metabolism Journal”.  The article is entitled, “Pituitary tumours: inflammatory and granulomatous expansive lesions of the pituitary” and includes an abstract.

Changes were also made to the website code as follows:

1. The ‘Print’ capability on informational pages was enhanced to reduce the number of steps required to actually print.
2. A date was added to the bottom of each informational page showing the last time the individual page was updated.
3. A ‘Home’ selection was placed on informational pages to allow a return to the home page of the website.  This is especially helpful if a search engine links directly to an information page without the website structure being started.
4. Additional tracking software was added to the website allowing improved tracking of how the website is utilized.
5. Internal code changes to improve the placement on some search engine lists.

An update was made to the ‘ECD Global Alliance’ page announcing a Medical Advisory Board for the organization has been formed.  Plans are underway to list the individuals serving on the Board of Directors and Medical Advisory Board in early 2010, once appropriate permissions have been received.