The following presentations were recorded during the 2016 Patient & Family Gathering located in Paris, France. Most of the presentation slides are also available to accompany the videos. We are pleased to have this information to share with those that were not able to attend the meetings or that wanted to recapture some of the information shared. Thank you to the speakers that volunteered their time and information. Thanks also to the volunteers and staff that were able to create and edit the videos for all to view.
Visit the ECD Global Alliance YouTube channel for all published ECD related videos.
Presenter | Presentation Slides | Presentation Video |
Stéphane Barete, MD | ECD Skin Issues | ECD Skin Issues |
Giulio Cavalli, MD | ECD Lung & Heart Issues | ECD Lung & Heart Issues |
Carine Courtillot, MD | Endocrinological Consequences of ECD | Endocrinological Consequences of ECD |
Eli Diamond, MD (Presented by Juvianee Estrada-Veras, MD) |
ECD Neurological Issues | ECD Neurological Issues |
Benjamin Durham, MD | ECD Studies at MSKCC | See ECD Studies & Trials Panel |
Philippe A. Grenier, MD | CT of Thoracoabdominal Involvement in Erdheim-Chester Disease | See ECD Scan and Radiology Panel. |
Filip Janku, MD, PhD | Importance of Clinical Trials | See ECD Studies & Trials Panel |
Kenneth L. McClain, MD, PhD | ECD Studies & Trials – Texas Children’s Cancer Center | See ECD Studies & Trials Panel |
Augusto Vaglio, MD, PhD | Renal & Ureteral Involvement in ECD | Renal & Ureteral Involvement in ECD |
Panel participants:Achille Aouba, MD, PhD, Lorenzo Dagna, MD, Juvianee Estrada-Veras, MD, Julien Haroche, MD, PhD, Filip Janku, MD, PhD, Kenneth McClain, MD PhD, Augusto Vaglio, MD, PhD |
ECD Studies & Trials Panel | ECD Studies & Trials Panel |
Panel participants:Marcus Chen, MD, Phillippe Cluzel, MD PhD, Phillippe Grenier, MD, Phillippe Maksund, MD |
ECD Scan and Radiology Panel | ECD Scan and Radiology Panel |
Physician panelists answer patient questions regarding Erdheim-Chester Disease. | Doctor Question & Answer Panel | Doctor Question & Answer Panel |