The following presentations were recorded during the 2015 Patient & Family Gathering located in Houston, TX.  Most of the presentation slides are also available to accompany the videos.  We are pleased to have this information to share with those that were not able to attend the meetings or that wanted to recapture some of the information shared.  Thank you to the speakers that volunteered their time and information. Thanks also to the volunteers and staff that were able to create and edit the videos for all to view.

Presenter Presentation(s) Videos
Timothy Craig Allen, MD, JD Social Media in the Rare Disease World Not available.
Naifa Lamki Busaidy, MD ECD & Hormones Not available.
Jean Campbell Power of Patient Groups The Power of Patient Groups
Susan Y. Chon, MD Not available. ECD and Skin
Maxine Grace de la Cruz, MD ECD & Pain Management ECD and Pain Management
Eli L. Diamond, MD Braf Negative; ECD & Brain Not available.
Nancy K. Feeley, RN, MS, CRNP ECD & Exercise ECD and Exercise
Horiana Grosu, MD ECD & Lungs ECD and the Lungs
Saamir Hassan, MD ECD & Heart ECD and the Heart
Filip Janku, MD, PhD Importance of Clinical Trials The Importance of Clinical Trials 
Cynthia Kizer, RN, BSN Insurance Appeals ECD and Insurance Approval Issues
Chaplain Richard T. Maddox, BCC Facing Key Spiritual Care Issues Facing Key Spiritual Issues
Kenneth L. McClain, MD, PhD ECD101 ECD 101
Omar Ozgur, MD ECD & Eyes ECD and Eyes
Susan Robertson, PhD, OTR/L, FAOTA  Financial Stability & SSI ECD and Social Security Applications
Robert Zieve, MD Integrative Medicine Not available.

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