Published Papers on Erdheim-Chester Disease

Links are provided to full-length papers that have been published free of charge on the internet.  Inclusion of a paper on this page does not imply the article is of any higher value than an article that does not appear here.  It simply means it is available to all via the internet.  Please note, we are in the process of attempting to obtain permission from publishers to post certain additional ECD-related articles here that have been forwarded to us by the authors.  If you cannot find an article you are interested in reading, please contact us and we will try to help you get a copy of the article.

The U.S. National Library of Medicine (NLM) and the National Institute of Health (NIH) support a website,, that provides access to abstracts of scientific journal articles, and in some cases access to complete journal articles.  Abstracts of papers can be obtained free of charge.  However, to obtain articles in their entirety often requires a subscription to the journal in which the article was printed.  As an alternative, many libraries have paid subscriptions to the journals and can help you obtain a copy free of charge.  In some cases, the articles have been published online and are available to all.  When articles of this nature are found, they will be placed on this page.  If you know of an internet-based article that should be placed here, please contact us with the website where the article can be found.

The articles are listed by the date they become available online.  (Caution, these are medical journal articles and may contain information and/or pictures that could be disturbing to some.)

Last updated: August 2, 2018

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