Weekly Online Chat Sessions

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The ECD Global Alliance hosts scheduled online chats each week. Anyone interested in ECD is welcome to attend. This includes patients, caregivers/carers, family member, medical personnel, researchers, etc. Click here to enter the chat room area.

For those who register with the ECD Global Alliance, emails are sent out announcing each chat session and a summary email is sent following each chat session. The time for the next chat session is also always posted in the chat room. If you have not yet registered with the group, you can always enter the chat room to find the time of the next scheduled chat session.

The chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects and sometimes just friendly discussion about pleasant things happening in participants’ lives. Most who attend the sessions have found it a good way to meet others whom they can correspond with outside of the chat sessions. For some this has proved to be a good way to build a support structure of others who are interested in learning as much as they can about ECD and providing mutual support to each other.

Summaries of each chat session are compiled and are listed below as they become available.

 

 

 

2017

January 7, 2017 January 14, 2017

2016

January 2. 2016 January 9, 2016 January 16, 2016
January 23, 2016 January 30, 2016 February 6, 2016
February 13, 2016 February 20, 2016 February 27, 2016
March 5, 2016 March 12, 2016 March 19, 2016
March 26, 2016 April 2, 2016 April 9, 2016
April 16, 2016 April 23, 2016 April 30, 2016
May 7, 2016 May 14, 2016 May 21, 2016
May 28, 2016 June 4, 2016 June 11, 2016
June 18, 2016 June 25, 2016 July 2, 2016
July 9, 2016 July 16, 2019 July 23, 2016
July 30, 2016 August 6, 2016 August 13, 2016
August 20, 2016 August 27, 2016 September 3, 2016
September 10, 2016 September 17, 2016 September 24, 2016
October 1, 2016 October 8, 2016 October 15, 2016
October 22, 2016 October 29, 2016 November 5, 2016
November 11, 2016 November 19, 2016 November 26, 2016
December 3, 2016 December 10, 2016 December 17, 2016
December 24, 2016 December 31, 2016

2015

December 26, 2015 August 22, 2015 April 25, 2015
December 19, 2015 August 15, 2015 April 18, 2015
December 5, 2015 August 8, 2015 April 11, 2015
November 28, 2015 August 1, 2015 April 4, 2015
November 21, 2015 July 25, 2015 March 28, 2015
November 14, 2015 July 18, 2015 March 14, 2015
November 7, 2015 July 11, 2015 March 7, 2015
October 31, 2015 July 4, 2015 February 28, 2015
October 24, 2015 June 27, 2015 February 21, 2015
October 17, 2015 June 20, 2015 February 14, 2015
October 10, 2015 June 13, 2015 February 7, 2015
October 3, 2015 June 6, 2015 January 31, 2015
September 26, 2015 May 30, 2015 January 24, 2015
September 19, 2015 May 23, 2015 January 17, 2015
September 12, 2015 May 16, 2015 January 10, 2015
September 5, 2015 May 9, 2015 January 3, 2015
August 29, 2015 May 2, 2015

2014

December 27, 2014 August 23, 2014 April 26, 2014
December 20, 2014 August 16, 2014 April 19, 2014
December 13, 2014 August 9, 2014 April 12, 2014
December 6, 2014 August 2, 2014 April 5, 2014
November 29, 2014 July 26, 2014 March 29, 2014
November 22, 2014 July 19, 2014 March 22, 2014
November 15, 2014 July 12, 2014 March 15, 2014
November 8, 2014 July 5, 2014 March 8, 2014
November 1, 2014 June 28, 2014 March 1, 2014
October 25, 2014 June 21, 2014 February 22, 2014
October 18, 2014 June 14, 2014 February 15, 2014
October 11, 2014 June 7, 2014 February 8, 2014
October 4, 2014 May 31, 2014 February 1, 2014
September 27, 2014 May 31, 2014 January 25, 2014
September 20, 2014 May 24, 2014 January 18, 2014
September 13, 2014 May 17, 2014 January 11, 2014
September 6, 2014 May 10, 2014 January 4, 2014
August 30, 2014 May 3, 2014

2013

December 28, 2013 August 24, 2013 April 20, 2013
December 21, 2013 August 17, 2013 April 13, 2013
December 14, 2013 August 10, 2013 April 6, 2013
December 7, 2013 August 3, 2013 March 30, 2013
November 30, 2013 July 27, 2013 March 23, 2013
November 23, 2013 July 20, 2013 March 16, 2013
November 16, 2013 July 13, 2013 March 9, 2013
November 9, 2013 July 6, 2013 March 2, 2013
November 2, 2013 June 29, 2013 February 23, 2013
October 26, 2013 June 22, 2013 February 16, 2013
October 19, 2013 June 15, 2013 February 9, 2013
October 12, 2013 June 8, 2013 February 2, 2013
October 5, 2013 June 1, 2013 January 26, 2013
September 28, 2013 May 25, 2013 January 19, 2013
September 21, 2013 May 18, 2013 January 12, 2013
September 14, 2013 May 11, 2013 January 5, 2013
September 7, 2013 May 4, 2013
August 31, 2013 April 27, 2013

2012

December 29, 2012 September 1, 2012 April 28, 2012
December 22, 2012 August 25, 2012 April 21, 2012
December 15, 2012 August 18, 2012 April 14, 2012
December 8, 2012 August 4, 2012 April 7, 2012
December 1, 2012 July 28, 2012 March 31, 2012
November 24, 2012 July 21, 2012 March 24, 2012
November 17, 2012 July 14, 2012 March 17, 2012
November 10, 2012 July 7, 2012 March 10, 2012
November 3, 2012 June 30, 2012 March 3, 2012
October 27, 2012 June 23, 2012 February 25, 2012
October 20, 2012 June 16, 2012 February 18, 2012
October 13, 2012 June 9, 2012 February 11, 2012
October 6, 2012 June 2, 2012 February 4, 2012
September 29 2012 May 26, 2012 January 28, 2012
September 22, 2012 May 19, 2012 January 21, 2012
September 15, 2012 May 12, 2012 January 14, 2012
September 8, 2012 May 5, 2012 January 7, 2012

2011

December 31, 2011 August 27, 2011 April 23, 2011
December 24, 2011 (no summary) August 20, 2011 April 16, 2011
December 17, 2011 August 13, 2011 April 9, 2011
December 10, 2011 August 6, 2011 April 2, 2011
December 3, 2011 July 30, 2011 March 26, 2011
November 26, 2011 July 23, 2011 March 19, 2011
November 19, 2011 July 16, 2011 March 12, 2011
November 12, 2011 July 9, 2011 March 6, 2011 (no summary)
November 5, 2011 July 2, 2011 February 26, 2011
October 29, 2011 June 25, 2011 February 19, 2011
October 22, 2011 June 18, 2011 February 12, 2011
October 15, 2011 June 11, 2011 February 5, 2011
October 8, 2011 June 4, 2011 January 29, 2011
October 1, 2011 May 28, 2011 January 22, 2011
September 24, 2011 May 21, 2011 January 15, 2011
September 17, 2011 May 14, 2011 January 8, 2011
September 10, 2011 May 7, 2011 January 1, 2011
September 3, 2011 April 30, 2011

2010

December 18, 2010 August 7, 2010 April 17, 2010
December 11, 2010 July 31, 2010 April 10, 2010
December 4, 2010 July 24, 2010 April 3, 2010
November 27, 2010 July 17, 2010 March 27, 2010
November 13, 2010 July 10, 2010 March 20, 2010
November 6, 2010 July 3, 2010 March 13, 2010
October 30, 2010 June 26, 2010 March 06, 2010
October 23, 2010 June 19, 2010 February 27, 2010
October 16, 2010 June 12, 2010 February 20, 2010
September 25, 2010 June 05, 2010 February 13, 2010
September 18, 2010 May 29, 2010 February 06, 2010
September 11, 2010 May 22, 2010 January 30, 2010
September 4, 2010 May 15, 2010 January 23, 2010
August 28, 2010 May 8, 2010 January 16, 2010
August 21, 2010 May 01, 2010 January 9, 2010
August 14, 2010 April 24, 2010 January 2, 2010

2009

December 26,2009 August 15, 2009 April 25, 2009
December 19, 2009 August 08, 2009 April 18, 2009
December 12, 2009 August 01, 2009 April 11, 2009
December 05, 2009 July 25, 2009 April 4, 2009
November 21, 2009 July 18, 2009 March 21, 2009
November 14, 2009 July 11, 2009 March 14, 2009
November 07, 2009 July 04, 2009 March 7, 2009
October 31, 2009 June 27, 2009 February 28, 2009
October 10, 2009 June 20, 2009 February 21, 2009
October 3, 2009 June 13, 2009 February 15, 2009
September 26, 2009 June 6, 2009 February 1, 2009
September 19, 2009 May 30, 2009 January 25, 2009
September 12, 2009 May 23, 2009 January 18, 2009
September 5, 2009 May 16, 2009 January 10, 2009
August 29, 2009 May 9, 2009
August 22, 2009 May 2, 2009

2008

December 27, 2008 October 11, 2008 June 6, 2008
December 20, 2008 September 27, 2008 May 28, 2008
December 13, 2008 September 21, 2008 May 24, 2008
December 6, 2008 August 15, 2008 May 17, 2008
November 30, 2008 August 8, 2008 May 10, 2008
November 22, 2008 July 18, 2008 April 30, 2008
November 15, 2008 June 27, 2008 April 24, 2008
October 26, 2008 June 20, 2008 April 10, 2008
October 15, 2008 June 13, 2008 April 4, 2008

Last updated: January 30, 2017

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    DeRidder, LA 70634 USA

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