Erdheim-Chester Disease Global Alliance

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What is Erdheim-Chester Disease?

Erdheim-Chester Disease (ECD) is an extremely rare blood cancer that can affect many different organs of the body. It is characterized by excessive production and accumulation of specific cells whose normal functions are to fight infections and eliminate foreign bodies. These cells, called histiocytes, infiltrate the loose connective tissue within body organs and cause inflammation. As a result, this tissue becomes thickened, dense, and fibrotic. If the disease is not controlled, organ failure can occur. In some patients, ECD may have a relatively benign course involving a limited number of organs. In contrast, in others, the disease can be more aggressive and may affect multiple organs, including, but not limited to, the bones, skin, heart, kidney, and brain.

10th Annual ECD Patient & Family Gathering

The ECD Global Alliance is excited to convene the 10th annual Patient & Family Gathering in Barcelona, Spain. The meeting will be hosted in partnership with Bellvitge Unversitari Hospital on 26 May 2025. All patients, family members, friends, and medical professionals are welcome!

On-site simultaneous interpreters will enable participation for English, French, German, Italian, and Spanish speakers.

Register Here

Click Here to Register (Non-English Speakers)

10th Annual ECD Medical Symposium

The ECD Global Alliance is excited to convene the 10th annual Medical Conference in Barcelona, Spain. The conference will be hosted in partnership with Bellvitge Unversitari Hospital on 26 - 28 May 2025. The ECD Medical Symposium will be held on 27 May 2025. All medical professionals are welcome!

Register Here

Support Our End of Year Giving Campaign

In a recent short video, Mark Anderson shared an inspiring message encouraging viewers to support the Erdheim Chester Disease Global Alliance (ECDGA). His message underscores the importance of the ECDGA’s mission to assist patients, advance critical research, and raise awareness about Erdheim-Chester Disease, a rare and serious condition. This year, your generosity will go twice as far. Thanks to matching contributions from anonymous donors, every donation made through 2024 will be doubled. Whether you can give a little or a lot, your support will have a greater impact in helping the ECDGA continue its work. Visit fundecd.org to make your donation, watch the video, and share the message. Together, we can help make a real difference for those affected by Erdheim-Chester Disease.